Education for families living with congenital heart conditions

A guide for parents

Moving from intensive care to the ward

Your Journal

Before, during and after

Follow your own hospital team’s instructions about medicines and eating or drinking; these can be different for each child.

Before
Ask when the team expects your child to move and where they will go.
During
Staff hand over your child’s care. Ask about the ward routine.
After
Ask about pain relief, feeding, medicines, getting moving and plans for home.

01

A different level of care

A bright hospital room with a bed, bedside table and chairs.
An example ward room, with space for rest and bedside care.Rooms and equipment vary between hospitals.Photo: Antti Yrjönen / Vantaa City Museum · CC BY 4.0

When intensive care is no longer needed, a child may move to a ward at the specialist hospital or nearer home. The teams pass on your child’s medical history, current treatment and care plan. Ward staff care for several children, so the bedside can feel less constantly attended.

Ask how often staff check your child and how to get help if you are worried or your child becomes more unwell.

02

What happens next

Getting used to the new place

You may feel relieved and worried at the same time. Ask to meet the nurse looking after your child and clarify what you can do yourself. A high dependency area provides more support than a usual ward, but less than intensive care. As your child recovers, the team may spend more time on medicines, feeding, getting moving and preparing to go home.

The steps depend on your child’s needs. They are not the same after every operation.

Make the handover useful to your family

Tell the receiving team about communication needs, routines and anything that helps your child settle. Ask which symptoms or concerns you should report straight away, and where the call bell is. Check overnight arrangements, meal facilities and the plan for relatives; these may differ from intensive care.

If transfer is to another hospital, ask who will manage specialist follow-up and how records and supplies travel with your child. A short list of the current medicines, feeding plan and next goals can help you follow the conversation and spot questions that still need answers.

03

Questions to ask

Save the questions you want to take to your next appointment. You can edit them in your Journal.

  • Who is our named contact on the ward, and who should we speak to if we are worried?
  • Which parts of our child’s care will continue on the ward, and what will be different from intensive care?
  • What needs to happen before our child can go home, and what can we start learning or arranging now?
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Sources and review

Sources checked 9 October 2026. Independent clinical review pending.