Education for families living with congenital heart conditions

A guide for parents

Preparing for heart surgery

Your Journal

Before, during and after

Follow your own hospital team’s instructions about medicines and eating or drinking; these can be different for each child.

Before
Write down questions and bring your child’s medicines and hospital information.
During
The team checks your child’s health and explains the operation, anaesthetic and consent.
After
Follow your child’s admission and preparation instructions. Contact the team if your child becomes unwell.

01

Before admission

A hospital assessment room with an examination couch and equipment.
An example hospital assessment room, one setting for checks before an operation.Rooms and equipment vary between hospitals.Photo: I99pema · CC BY-SA 4.0

An appointment before admission helps the hospital plan surgery and check your child’s health. Your child may have blood tests, an ECG to record the heart’s signals, an echo, an ultrasound scan of the heart or chest scans. The tests depend on the operation. Ask the surgeon to explain what they intend to do, the alternatives and the important risks.

Staff should explain things to your child and listen to their questions. They should use words or other ways of communicating that suit your child.

02

What happens next

A child-sized explanation

Keep explanations honest and concrete: where your child will go, who will help and what they may notice afterwards. Ask for a play specialist, who can help children understand hospital care through play. Ask what other information could help your child prepare. Avoid promising that nothing will hurt or giving a definite homecoming date.

Instead, ask how discomfort will be treated and what must happen before leaving hospital. Let your child choose a comfort item or a question to bring.

Plan the practical pieces

Check when and where to arrive. Follow the hospital’s instructions about when your child must stop eating or drinking, and which medicines to give. Ask who to contact if your child becomes ill before admission. Ask what happens if surgery is postponed. Decide how relatives will receive updates, who will care for siblings and what help you need with travel, work or accommodation.

Pack documents and the current medicine list alongside everyday essentials. An operation can make familiar routines difficult; ask the team which ones can continue and where you can take a break. You can request another consent discussion if any part of the plan remains unclear.

03

Questions to ask

Save the questions you want to take to your next appointment. You can edit them in your Journal.

  • What will this operation change in our child’s heart, and what differences or care needs will remain afterwards?
  • What are the main risks and alternatives for our child, and what makes this operation the recommended option?
  • Who will contact us if the plan changes, and who can we speak to with questions before the operation?
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Sources and review

Sources checked 9 October 2026. Independent clinical review pending.